Okay, I said I'd post something about the 'cryptic' comments involving dialysis. Here it is....
Read More of "Mystery Explained"
Long story short: I have a kidney disease called Focal Segmental Glomerulosclerosis and have over the last three years been attempting to halt the progression of the disease.
As of November 2nd, I've been undergoing hemodialysis treatments since my kidney function has decreased below 10% into what is known as End Stage Renal Disease.
The treatments have to be performed three times a week - in my case, Tuesday, Thursday, & Saturday - for four hours each time. And after each treatment, I am always 'close' to being dehydrated and hence, feel like shit for the rest of the day.
Now, you might be wondering why I'm telling you all this. The short answer is: I don't really have a specific reason. I have toyed with the idea for several months and thought: Well, it is a significant part of my life and I write about my observations in life.... So, I thought I'd 'spill the beans' - so to speak.
I seriously am not looking for pity or sympathy - I get plenty of it from friends & family. Just thought I'd explain some of the factors that make Mikey what he is.
It has contributed to my decline in posting since November 2nd; I seriously thought my lack of enthusiasm was from being burned out on politics, but in hindsight, it's more of a general lack of energy and the increasing toll that dialysis taking on me in my daily life.
There are a few people in the blogsphere that are aware of this and they've been very cool in keeping it to themselves. Stevie, Ruthie & Scroff, deuddersun, Citizen Smash, Da Goddess, and a couple of others that I cannot recall at this moment (I'm sorry) have been taken into my confidence and have earned the trust that I extoll to them.
To these folks I say Thank You!! for your discression and your support.
For some simple questions that I somewhat anticipate:
- How long do you need to keep doing dialysis?
Until a donor kidney can be found and implanted in me.
- What determines a good 'match'?
It used to be blood type was the major concern, but advances in anti-rejection medications increases the chances of say someone with blood type A+ donating a kidney to me and having the kidney not being rejected.
Incidently, I'm O+.
- Has your family offered to donate a kidney?
Yes, but it isn't just a simple choice of offering one; the prospective donor's health is seriously evaluated before they even begin to consider a full medical workup.
Additionally, a good chunk of my family members are.....older and the viability of an older person's kidney in a transplant situation is deminished because the donor kidney has more 'wear-n-tear' on it.
- Are you on a transplant list yet?
Not yet, but that's because I'm still working through all of the medical tests before I can become a candidate for transplant. The reasoning is that they want to 'solve' any other medical problems that I might have before they put me on a nation-wide list.
- How as this affected your life?
Well, I'm still working part-time - approxiamately 16 hours a week - and I'm still going to school full-time. Making room in my schedule for the dialysis treatments has been a serious excercise in time management; the tricky part was trying to get the classes I need this quarter to 'fit' into my work/dialysis schedule.
Luckily, the university has been very accomedating and my bosses at the navy base I work at have been just plain outstanding in working with me to make it easier for me to continue working and go to school and take care of my medical problems.
If I had any doubt that working for the U.S. government wasn't cool before this, that's all gone now. I want to work for a 'company' that strives to help their employees beyond what most other companies would consider support.
- Can I help?
Yeah - think good thoughts and don't 'blow off' that organ donation box on your drivers license. That and if you feel like donating to kidney research, I wouldn't be offended.
I don't know what else to say about this except:
there it is.
All done with "Mystery Explained"?
Comments on Mystery Explained
Hey Mikey,
Guess I'll be nice to you here 'cause I'm gonna slam one of your other posts, lol!
Listen, Mo, the offer still stands. I'm in great physical shape ya know, just ask scroff. But ya better like Johnnie Black 'cause that's what it's used to.
Get better! I need you around to laugh at when we impeach George Bush!
d.
|| Posted by deuddersun, January 14, 2005 04:53 PM ||Sorry, dude. I've gone through dehydration and then heat stroke, it wasn't a fun time.
|| Posted by Chase, January 14, 2005 05:24 PM ||I got hit in the kidney with a baseball bat once.
I have O+ blood, too.
|| Posted by Geoffrey, January 14, 2005 06:30 PM ||Sorry to hear about all this Mikey. Hopefully you're feeling as good as you can in light of everything. Feel better!
|| Posted by jaws, January 14, 2005 06:55 PM ||But ya better like Johnnie Black 'cause that's what it's used to.
Used to??? That's what it's made of...
Glad you finally posted about this, Mad One. I was wondering how long you were going to sit on this.
btw, there's nothing wrong with a little sympathy... what are people supposed to feel... "sux to be you?" I don't think so...
|| Posted by scroff, January 15, 2005 02:40 AM ||I'm O-Pos, too.
And I might have an extra "bean" around here somewhere that you could have. I don't use it much.
I'll ask my doctor.
PS: L&R is BACK!
|| Posted by Rob@L&R, January 15, 2005 09:14 AM ||sort of.
& Thanks for YOUR offer, don't think I'll need it.
Wow, sorry to hear that Mikey. Polyscitic (sp?) kidney disease ran in our family. My grandma was a dyalisis paitent for 23 years before she dies. Grandpa used to give her her treatments at home three days a week. So I can empathise with you, I remember how it used to wipe out my grandma.
|| Posted by Maeve, January 15, 2005 09:17 AM ||Mikey- good luck! My mom had a kidney transplant back in the 70s (my parents were very involved with the Kidney Foundation for many years- very worthwhile organization for anyone interested in making a donation!). Her donor kidney came from her mother. Long story short (2 rejection attempts, etc) both Mom and Grandma are still doing great. Honestly, with the advances in medicine that have taken place since Mom's transplant, things are looking up for patients like you!! :-)
One thing about what you said about "what people can do to help." It's not enough that you simply check the organ donor box on your driver's license. You need to also share your wishes with your family, because in some states, the family makes the final call.
|| Posted by Beth, January 15, 2005 09:31 AM ||having never been hit in the kidneys with a baseball bat or otherwise, (plus i'm female),I can't identify on that level. :)
|| Posted by Shae, January 16, 2005 02:15 PM ||but man, some days I feel 85 or so, and then I get to thinking about what you're going through, and I'll get over my whining.
really enjoy reading your blog, Mike. If anything can be said about the blogosphere, it's that you'll find some good supporters out there. I wish the best for you!
Anything for you, Darlin'.
*hugs ya while grinning thru tears*
|| Posted by Stevie, January 16, 2005 03:54 PM ||oy vey! *please* let me know if there's anything I can do to help (but not your labs or other school assignments... ;-)) I'm going make a donation to the National Kidney Foundation in your name, if you don't mind.
|| Posted by nathalie, January 18, 2005 01:46 PM ||oh, yeah-- take care of yourself. your family needs you!!!
|| Posted by nathalie, January 18, 2005 01:47 PM ||You rock, Mike. Seriously.
|| Posted by caltechgirl, January 18, 2005 05:58 PM ||Mike, you are very awesome and I pray that one day when I get my license Ill be brave and unselfish enough to check the organ donation box. Anyways Ill be praying for you.
|| Posted by ladyi_15, February 23, 2005 08:07 AM ||Mike, I am sorry to hear you have FSGS. I work for The NephCure Foundation, which is the only organization solely seeking a cause and cure for FSGS and Nephrotic Syndrome. Please check out our site and shoot me an email.
|| Posted by Kevin Tierney, April 11, 2005 07:48 AM ||I hope you get well mike, (both my father and my brother are mike too!) if I wasn't donating my kidney to my uncle this month (may!) I'd give you one, I'm terrified of the procedure , it happens near the 10th their setting the date this week, he has Polycystic Kidney Disease and he's in rough shape, he has 4 kids and is the only family I have besides my brother, so I know what your going through in a way, well sort of. But anyway, I wish you the best of luck and hope things end well for you, take care!
|| Posted by Kristie, May 2, 2005 04:38 PM ||Kristie
Wow! Thanks for the link to my site! I just noticed it on your main page!
Hang in there!
|| Posted by Tetzman, May 25, 2005 11:58 AM ||T minus 6 days for me.... I'll be blogging from the University Hospital in Denver after 5/31...
I'm nervous as hell, and my wife's a wreck, but I'm pretty sure transplant will be better than dialysis!
As a fellow dialysis patient (here in Australia), all I can say is best of luck, and hang in there!
Cheers
Stu
|| Posted by Stuart, May 28, 2005 04:13 AM ||The cause of focal segmental glomerulosclerosis is usually unknown. A small number of cases result from reflux nephropathy. The condition affects both children and adults. Males are affected slightly more often than females, and it also occurs more frequently in African-Americans.
Focal segmental glomerulosclerosis causes about 10 to 15% of all cases of nephrotic syndrome. In this condition, protein is persistently released in the urine, especially in the form of urine albumin. Most cases will progress to long term, chronic renal failure.
Although the disorder seems to be immune-system related, response to corticosteroid or immunosuppressive medications, which modify our immune response, is inconsistent.
|| Posted by Macgrath, September 30, 2005 08:43 PM ||Yup - that would be me. Both immunosuppressives AND steroids failed to do anything. As a matter of fact, the steroids induced Type II diabetes in me for the duration of the treatment - the worst five months of my life.
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January 13, 2005
Putting on the Ritz (Cracker)
Dispite feeling 'crappy', it's a quite evening at home....helping the kid with geography homework - specifically, the 13 American colonies.
The wife is having some sort of 'candle party' - the house is full of chicks, all gauking at candles & froo-froo crap like that. The nice part is that I can hide out in the bedroom and occasionally venture out to pick up nummies that are spread out all over the dining table.
Mmmmmm......pepperoni & cheese on a Ritz cracker.....
Comments on Putting on the Ritz (Cracker)
Dontcha just love them or-derves?
d.
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SoCal Blech Squared
Different day, but it's basically a repeat of yesterday - especially the 'feeling crappy' part.
The only upside is that I get to go home and watch 'Battlestar Galactica' again cause I taped it.
Comments on SoCal Blech Squared
Taped it!! As in VCR. You're so retro.
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January 12, 2005
SoCal Blech on a Sunny Day
Nothing 'interesting' to post about today except:
- Maria at By Beauty Damned is losing her shit over 'right-wing thugs' making her look foolish on a myriad of topics. So serious that she's banning some and going on a deletion spree.
- Hemodialysis officially sucks cause you feel like shit when you get 'drained' to your body's 'dry weight'.
- It's not raining anymore here in Southern California, but the damage is done: big-ass mudslide up in my sister's neck of the woods and Eucalyptus trees are uprooting all over San Diego because the ground is super-saturated.
Like I said - nothing much....Take my advice: avoid it at all costs.
Comments on SoCal Blech on a Sunny Day
Hemodialysis??? Are you and yours okay?
|| Posted by Chelle, January 12, 2005 05:07 PM ||yeah... is everything ok? When I was little, we actually had a hemodialysis machine in our basement. My mom was on dialysis for a couple of years, and then she had a transplant.
Hope everything is ok.
|| Posted by Beth, January 13, 2005 08:01 AM ||This is something that I've been attempting to blog about, but haven't really been able to....'formulate' a method that doesn't make me sound like a whiner.
I'll post more info soon.....
|| Posted by Mad Mikey, January 13, 2005 08:13 AM ||Hey Mikey..it's not whining, friend.
|| Posted by ruthie, January 13, 2005 09:56 AM ||Just dropped by BBD... that one fella reminds me of Al...
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January 11, 2005
Digital Brown Shirts vs. LGF
It's one thing to disagree with something that's posted on the Internet - specifically the 'blogsphere', but it's another to perpetraite a Denial Of Service attack:
It always amazes me that when some barking moonbat cannot stand to have another opinion floated that contradicts theirs or even makes them out to be a complete fool that they have to resort to the 'digital brown shirt' tactics like this.IMO these morlocks are no better than pedophiles and deserve the same punishment - quartering.
Comments on Digital Brown Shirts vs. LGF
Quartering? Hey, if you want to get somebody DRUNK how's about buyin' me a round?
....
What say? He's not talking about drinking games? He's talking about... ewwww... William Wallace style, huh?
Well then, MARCH ON Mikey! (But I could still use that drink...)
|| Posted by Mike the Marine, January 11, 2005 08:35 PM ||Sorry to disappoint you MTM - 'William Wallace style' is exactly what I meant....
|| Posted by Mad Mikey, January 12, 2005 12:40 PM ||so that's what happened to LGF... grrrrrr
|| Posted by nathalie, January 12, 2005 02:18 PM ||LGF posters have been behind DOS attacks on left-wing sites. So no surprise that they are being targetted.
Someone needs to bake all you leftie/rightie DOS attackers a big fat hero biscuit!!
|| Posted by Marc, January 13, 2005 02:40 PM ||No offense to you Mikey, but fuck lgf. Do you feel as strongly about Armstrong Williams? Talk about manipulating the media!
d.
|| Posted by deuddersun, January 14, 2005 04:59 PM ||Armstrong Williams taking money to promote 'No Child Left Behind' was a bad move on his part and I tend to take his admission that 'he screwed up' as the truth.
That aside, my original intent for this post still stands: whether you agree with them or not, LGF (and its commenters) have as much right to speak their minds as say the dorks at Aztlan.net....even if I'd shead NO TEARS if the Aztlan dorks got eaten by cute puppies.
It's one thing to not agree with someone else's opinion - it's another to try to censor them outright.
I've always thought that the best argument is the one that stands up to scrutiny.
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January 10, 2005
Boxer's Endorsement for Women
Nicely glommed from Jeff at Beautiful Atrocities:
Comments on Boxer's Endorsement for Women
That was hilarious! Shows the ridiculousness of "morals" with the liberals...
|| Posted by Sirena, January 10, 2005 04:49 PM ||Yeah. And the Re-pug-nicants demanding a new election because their guy lost the governorship in Washington is okay, right?
Shit. Since they couldn't "verify" Ohio, maybe we should have another vote for the Presidency?
And sirena, speaking of "morals", think I'll do a series of posts exposing the real "morality" of the Righteous Right! Thanks sweetie, this should be good!
d.
|| Posted by deuddersun, January 14, 2005 05:07 PM ||Hmm, speaking of the hophead... maybe if Rush had tried suppositories he wouldn't be a chickenhawk today. But if he wasn't yet another right wing chickenhawk, he wouldn't have lied his way out of serving the country he's trying so hard to fuck up today.
It was funny, though, but I always get a kick out of republicans who get worked up because Clinton got a blow job in the white house. Clinton did plenty of other stuff, like NAFTA, to get worked up about, what's with the focus on the sex? Sounds like someone needs to get laid...
I also like how republicans pull out the "morals" card when it suits them... right. How "moral" was it to use tax-payer money to buy off a journalist?
funny... Dan Rather should have been hung... but I don't hear any outcry from all the right wing bloggers about this one... oops!
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UNhelpful Part II
For those that are 'visualization-type' people, here's something to help in showing why the United Nations is a collection of Keystone Cops:
(Nicely glommed from Chris Muir at 'Day By Day')
Comments on UNhelpful Part II
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January 09, 2005
Stellar Thinking Dude
Sometimes I cruise over to San Diego Indy Media to see what the local barking moonbats are up to these days.
Here's a real gem of an idea they have for January 20th: Nationwide General Strike.
After laughing hysterically at this, I left the following comment for them (assuming it doesn't get deleted since they've been known to do that with comments that make them look stupid):
Read More of "Stellar Thinking Dude"UPDATE: As expected, the worms deleted my comment. Guess they couldn't handle the truth.....
All done with "Stellar Thinking Dude"?
Comments on Stellar Thinking Dude
Seeing as how I don't have an argument, I'd like to take this opportunity to say that I dig little boys.
EDIT: Thanks for giving me another IP to ban. This is what happens when you come to the House of Mikey and act like an asshated clown.....
|| Posted by nunya, January 9, 2005 08:29 PM ||Methinks the people who most likely to participate in this, are people who will get paid for this day off anyway. Personally, I think they ought to take a year off. With no pay. That would be a statement. Plus since a great number of these protesters are in academia (says me)they wouldn't be spreading any of thier bullshit for a year, they would be doing their country a big service. C'mon people think BIG.
|| Posted by ron, January 9, 2005 11:42 PM ||I can see how this will disrupt the inauguration, oh yeah. I"m sure the Bush family will be sorely offended. (yawn).
|| Posted by Shae, January 10, 2005 09:54 AM ||if that's the best they could come up with, no wonder Bush was elected.
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They're Back
Just when you thought the threat of them was gone:
Oh dear God.....the horror.....the horror.Comments on They're Back
He he he....but I thought they went to Syria.
|| Posted by jaws, January 9, 2005 05:15 PM ||I think Israel would've noticed if Arafat tried to bring 'em in.
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About Me
Who is Mikey?Mikey is a forty-something U.S. Navy veteran that is currently taking a break from being a full-time student at UC San Diego studying electrical engineering.
He's also a husband, a father, a former Independent/Democrat and is currently dealing with dialysis and getting on the national kidney transplant list.
The words written here are his opinions and his observations on the stupid things in life. If you do not like them or do not agree with them: tough squishies. In America, you're entitled to Freedom of Speech not Freedom to Not Be Offended.
Help Mikey by not being part of the problem and instead, be part of the solution so that he doesn't have to comment on your sorry actions.
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